On March 7th, 2015, Brayden woke up, ate breakfast and played with his brother like every Saturday morning for his 20

months of life. By mid-morning, he appeared to have come down with the flu. At 4pm, he was rushed to Central Maine Medical center, by 11pm he was being life- flighted to the PICU at The Barbara Bush Children’s Hospital. He was not discharged from the hospital until May 26th. Brayden suffered a Mid-Gut Volvulus, his small intestine wrapped so tightly around his large intestine that it cut off blood flow and after two emergency surgeries and less than 50% chance of survival, Brayden was left with no small intestine and only half of his large intestine. Also, at some point during everything, he suffered two strokes that left his left hand and right foot with some modality issues even to this day.

Without his small intestine, he was unable to break down and process food. He would get his daily nutrition from a substance called TPN (Total Parenteral Nutrition) which is an IV that runs for 11 hours overnight and a special formula that he gets through his G-Tube during the day. After his initial two surgeries, he needed to heal and prepare the remaining intestines for what his future would hold. He started with tubes in his stomach, his duodenum, and his large intestine, a line in his arm and various breathing machines. He started on 24 hours a day continuous TPN, and slowly worked down to 6 days a week 11 hours a day and 1 day where he gets hydration. In October of 2018, Brayden’s central line was removed; a milestone that his family never expected. Today, only a g-tube into his stomach remains. If you did not know what happened to Brayden, you probably would think he is a typical 3-year-old. He is a funny little boy and tries to make you laugh every day.

For more information on the Children’s Miracle Network Program, check out our newly redesigned CMN page.